Saturday, January 28, 2012

A congenital heart disease in children's "wild mother"

Brows to understand " sopher" some time ago, the national media around "wild mother" Chen Rong cut liver saving child events feeling great maternal love.

This mother love inevitably reminds me in our hospital, a trifle.

Some time ago, my city of charity raised funds to help a group come from poor families in the treatment of children with congenital heart disease.

Congenital heart disease is due to heart and great vessels in embryo developmental disorders arising in the course of, the location, connection of exception, thus allowing the blood flow problems, ranging from impact quality of life is bad.

As a local maximum of children's Hospital, where I am in hospital number distant children with congenital heart disease than other hospitals.

So the message is sent out, out-patient or wards, consulting the parents more clearly. However, in the audit process is also very strict. First of all, the more common in children with congenital heart disease, according to statistics, each year the national about 20 000 children are born with congenital heart disease, half of them children require surgical treatment, but for various reasons each year only 4 000-5 000 children have the opportunity to receive the operation. Secondly, for various reasons, similar to the charity usually will focus where the disease is relatively light, cure grasp larger children, that is, as far as possible ensure that the "save a live one." Therefore, although there are many parents to their children do consulting, but considerable part because not in conformity with the relevant conditions and disappointed to leave. Even some parents to return several times, hoping to seize this opportunity to save their child.

The mother is the second time to the hospital asked about this matter.

Yesterday came over, and today again but also with children. She squatted in off-site activities boards, from top to bottom close racing everyword was afraid to miss little details — — their mothers can be lifesaving for details.

"Really sorry.

" I said, in fact, the same thing yesterday said it again," you can see, the scope includes only a few of the local district or County, you're not in range, I really do, but ... "watch this despair of his mother, I did not finish.

Really do not have the heart to tell her that, in fact, the child is not a simple type of congenital heart disease patients.

He had a includes four types of pathology of relatively complex congenital heart disease — "tetralogy of fallot." This type not only surgery mortality rates much higher than ordinary CHD, costs are also higher.

"Our children can live?" she kept asking.

I know, in fact, the same problems she may have been asked countless other doctor, maybe she would like someone to tell myself that the child even if not operation also can live ... I asked the other doctor heuristically. She answered: "child 4 years old, we confirmed. At that time, the doctor said our children without surgery live but for 3 years. But now he has 8 years old, is always pneumonia. "While watching strike again.

This child is 8 years old, you can look up that is 6 years old, very thin.

His face is green the color purple, the lips like Eggplant skin. This is because his heart in the right half without blood oxygenation, not after lung and direct flow to the left half of the heart and through the aorta to the body, blood, into the many restore hemoglobin, resulting in cyanosis. Sooner or later appear under cyanosis, can roughly predict "tetralogy of fallot," the patient's natural history. The child is born soon after the emergence of cyanosis. Theoretically, he could grow to 8-year-old already does. See now the State knew, his remaining days should have been. Even if now someone gave them a sum of money to complete the operation, the children also had to miss the best surgicaltime, postoperative survival chances are extremely slim. However, in the face of a near collapse of his mother, I really don't know what to say ... However, the mother is still not willing to give up hope, stop every walk her doctor, attempt to recover for their own children a future.

In fact, similar tragedies every year in our part of the family, untreated various congenital heart disease in children in approximately 60% to die within 1 year of age.

Unfortunately, humans are still not fully explains the causes of congenital heart disease. It may be associated with intrauterine infection (such as kosac virus), pregnant women taking anti-cancer drug, alcohol, etc, thus strengthening the health of pregnant women to avoid and the number of risk factors is also the only every couple can do "prevention". Obviously, this does not solve all problems.

On the Web to "CHD" to search for keywords, you will find many charities are committed to helping these poor children and their families.

However, in the face of large numbers of poor children with congenital heart disease, the limited funds still just a drop in the bucket.

□ Li morning (Heilongjiang)

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